LivingWithThePain's Blog











{September 27, 2010}   Pain getting the better of me

So recently the pain has gotten the better of me. At work, one of my bosses asked to speak with me regarding my take on something and I was in pain beyond words. What he wanted to discuss literally punch me in the face and with the pain on top of it, I could not handle it. So to my horror, I began to tear up and a few got past my guard. He now thinks that I am super emotional and a complete basket case. Even though he’ll deny it all day long, I know that it is fact.

One thing ran through my mind when all this was happening….If Kimon was here, he’d be calling an ambulance. I remember the threat to this day! We were working and he looked at me and said “girl if you ever start crying here are work, I’m calling an ambulance cause your about to die”. So this thought helped me get myself back together that night and work the remainder of my shift.

Those of you who know me personally, know that I should have left because I was completely tapped out. I’m proving to myself that I can push through more and more pain if need be. I really wish the need wasn’t there, but that’s life I guess.

I talked with Chris this evening and we have decided to try and change our diet again. No more fast food that just causes me to have more pain, but good home cooking. This way I can regulate what I eat. One of my other bosses has said if I try to take control of this on my own and prove that I can commit to this change, she will help me hone it further to make the pain hopefully disappear. At this point I’m desperate and will try anything. I am taking too many pain pills in my opinion and this needs to stop.

I am only 29 years old and I can not imagine living the rest of my life like this. I know deep down that this is only half of what my grandmother went through and she still pushed herself to work and be functional. I feel that I must push through like she did to make her proud of me. I know that she never wanted this for me or my sister. At least one of us has escaped this nightmare and I’m thankful that she doesn’t have to deal with it. I know that she is a very strong person but she is really just starting her life and doesn’t need this extra road block. I hope she never has to feel the pain as I do.

I also try and make my boyfriend proud by getting up and going to work everyday. Even though most days I don’t want to move, I make myself for him. I know that I have to have a reason to get up and make myself be mobile but some days it’s really too hard. Those are the days that I push even harder.

I know that there are some out there saying you don’t have to prove anything, if you need te time take it. Believe me when I ay I know where you are coming from, but he knows me better. He can look at me and know when I’m done. I could go to the government and file for disability and never have to work a day in my life again. But really, what kind of life would that be anyway. I would fall apart even faster not having something to get up for on a daily basis.

If and when I need the time and the help, I’ll ask for it. I don’t ask for help often, so if I ever ask you know I’m for real.

To those of you out there who are living with pain everyday…Please find a great support team! Without the love and support the journey is long and hard. You have to start with yourself first. A wise woman once told me, that in order to start healing is to start with yourself. If you are not willing to make the changes and choices to better yourself, nobody else will.

It’s really like a person who has an addiction. They have to see the problem, acknowledge it and fix it before others will offer their assistance. Look long and hard in the mirror and find out if you like what you see. If not, start making the changes yourself and others will help you along your journey.

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{July 24, 2010}   Fibro and more

So I went to see my primary back at the beginning of June I think.  All my tests came back fine and dandy.  I mentioned that I was suffering from some abdominal pain again like when I stand up I feel a pull or cramp in that lower woman area. 

So they sent me for an ultrasound.  Well I dragged my feet and thought that I would get to it eventually.  Well my rheumatoid doctor send me for an MRI as well and I had a follow up last Thursday, the 22nd.  So I figured I should get the MRI done so I she had the results by the time my appointment came up.  Well that’s when I remembered I needed an ultrasound too, so I made an appointment for both on the same day at the same place.

So my primary calls me the other day and tells me that I have another ovarian cyst.  The nurse tells me “these things usually take care of themselves” so we will have you go for another ultrasound in about 3 months.  Mind you I have already been dealing with the pain for a month or so prior.  I waited almost 2 months to actually get the original ultrasound done and now I have to wait another 3 months.  So I asked the nurse what side it was on and how big it was.  She didn’t know??!!  WTF!  How can you call someone and tell them that there is something wrong with them and not even have all the information?  So I asked the nurse to put a note in my file.  “Please tell the NP that the last time I have ovarian cysts, I had them for over 6 months and the only reason it went away was due to surgery!”

The nurse then asks if I am okay waiting the 3 months for the ultrasound.  I said sure.  I will not be surprised if it is still there then and if not, super for me!

So the MRI came back.  My doctor was looking for a pinched nerve or something else to determine why I was having so much pain everywhere.  Maybe a hidden reason other than fibro.  Okay, I get that.  All it told her was I have arthritis in my neck.  Well, the x-ray that I had done like 6 months ago told her that, so it was a pointless expense that I will probably have to pay out of pocket because my insurance sucks.  But whatever, I got a lot of information out of it right!

Oh and tonight I went to a wedding reception, more like a house party.  They were having a drinking contest “flip the cup” and beer was the poison.  Well beer is made of yeast, which inflames the fibro, so I said that I could not play.  The groom proceeds to tell me that he thinks that fibro is bullshit and he came to this deduction because of the commercials that they play on television.  “Fibromylasia is a real disease.”  He says that if you have to say it’s real, then it’s something that is bogus.  I told him that the disease itself is not bogus but the medication is a joke, at least for me.  Nothing has helped. 

My doctor put me on Cymbalta, the depression medication, thinking that it has to do with the other chemical fluid that is in the brain since I didn’t respond to the other medication.  Well I read about it and it says that it can help with fibro too.  So sure I’ll try it.  I’ll do anything to help get rid of the pain right?  Yeah, side effect suicidal tendencies.  UNDERSTATEMENT!!!!!!  I took it for 3 days and was ready to literally jump off the Skyway!  My Supervisors at work even noticed that there was something wrong with me.  Thank goodness I have Chris and he told me to stop taking the medicine.  Otherwise, who knows if I would have jumped off the bridge or not.  I mean I wasn’t actually at the bridge but I was heading for the car to go!  Just didn’t want to leave the car up there for Chris to have to figure out how to get there and get if afterwards.  Completely selfish! I know right. 

So that’s my story as of now.  My doctor didn’t give me anything else for the primary meds of fibro.  She is sending me to physical Therapy in hopes that this will help strengthen stuff and help me build up my resistance without all these medicines.

I’ll let you know how it goes!
Erika



{June 3, 2010}   The Move

So we had to move because there was mold in our apartment.  We really didn’t think much of it at first because I was able to wipe it off the walls.

Well it came back 3 more times.  We told the office what was going on and they came in and did a treatment to the walls that was suppose to kill all the mold within the walls.  Well over the winter it came back on the window sill and the office told us that this was normal due to the windows being old and that we should wipe the water off the windows to keep this from happening. 

Ok, I can kind of understand doing our part in preventing the mold from recurring, so we did that.  They then told us that if we used the air conditioner that it would make the problem disappear and nobody came to the apartment to do the “treatment” on the window sill. 

We decided that we had had enough of the mold and told the office that we needed a different apartment.  We were not even trying to leave the complex, we just wanted a different apartment that was mold free.  Well they didn’t have another apartment for us to move into, so they let us out of our lease. 

So the looking for a place begins.  We were lucky enough to find a decent place that was still close to work and that was reasonable in price.  The old complex asked if we had found anything, so we told them and they proceeded to tell us how crappy this new place was.  I stopped him right there and was like, look we didn’t ask for mold.  We didn’t ask for you to let us out of our lease, we just asked for a “mold free” apartment.  I mean they didn’t even want to pay for a hotel room to actually take care of our current unit.  It’s not like we did this on purpose so we could move.  We were very content where we were.

So, I start packing up all of our things.  A couple of friends said that they would help us move.  One got sick, so was unable to help us but the other came.  Chris and I had already moved all the boxes that we had, so it was just the furniture that was left.  Chris and I picked up the truck at Noon and he had it returned by 1:30.  They asked if something was wrong with the truck because it was brought back so fast. 

I have almost finished all the unpacking.  The girls are thrilled with their new room and the fact that there are 2 bathrooms now.  We have no bed to sleep on because when we lifted it, the bottom was covered in mold and the top of the box springs.  That was completely gross!  Can you imagine that all this time, we have basically been sleeping in mold?  No wonder I have been feeling so run down and Chris is always congested!

Due to the fact that we had help from a wonderful friend, I had little pain due to the move.  I am suffering a little because of moving all those boxes and unpacking everything but it so could have been worse.

So now I will continue the rest of my vacation.  We will be going to Jacksonville to see his mom on Friday and Saturday.  It kind of sucks because I was hoping to have the entire week but just like the place I work at, things change all the time.  You have to be on your toes because the next move you make may not be what you have planned.



{May 6, 2010}   OMG!! What a day!

As today approached, I knew I was in trouble.  But I had no idea what I was in for and the day is not even over yet.  Let’s start from the beginning, shall we?

So the week started and I spoke to the “Ex.”  My oldest daughter does not have school on Friday and so I was to either pick them at the ass crack of dawn or from the former In-Laws!  Yeah, ass crack it is!  So, I don’t get off from work until 3am Friday morning, and need to pick them up by 9am.  So, not really a lot of sleep to deal with a 4 and 6-year-old. 

Wednesday my Oldest daughter, Alexis, calls and asked me to come to her classes “Mother’s Day Party” that is on Thursday morning at 8 am.  YAY!  So I do what any good mother would do, I get up and go.  Then Chris gets a call from his Dad who needs a ride to the VA  and he has to be there at 8:15.  This works because the school and the VA are near each other. 

So, I do the Mother’s Day thing and Alexis starts crying when I have to leave, even though she’s spending the entire weekend with me.  So emotional trauma from the get go, to go on top of the “tiredness.”  So Chris comes to get me and we start nebshitting around at Wal-mart and Best Buy.  While we are doing this, Chris’ Dad is at the VA for an appointment.

So no sooner do we get into Best Buy, does the VA call.  Something is wrong and they are taking his Dad to the ER.  Sheer panic starts to go through Chris and right into me.  More emotional trauma.  The adrenalin starts pumping and I am all worried about Chris.  His Dad is very important to him and it’s not clear on his face what is going through his head, but I know.  I am worried of course, but someone has to be in control.  I offered to drive but as I know how Chris drives and anything less at this point would be unacceptable, I didn’t push, he has to get there now!

He wants to get there as soon as he can.  The fast the better.  If he’s there, then it will be alright.  He just has to get there and his Dad has to be alright.  Once we finally get to the VA, Chris is like running through the hallways trying to find the ER.  He’s not really running but I almost am to keep up, because he kept stopping for me.  The reception guy is not helpful at all, just sitting on his ass and not doing  adamn thing.  We get there and almost beat his Dad to the ER, so of course he’s not in the system yet.  That’s understandable, nobody drives like Chris and add panic to that, it’s dangerous.

So, after about 20 minutes, Chris gets back up and asks if his Dad is now in the system.  The guy says, “oh yeah, he’s in here now!”  Ok dumbass can someone go and see him.  “I could go back there but the doctors are probably going to tell you to wait because they need to do testing.”  Again, I get that, but could you at least tell the Doctors that there are people in the waiting room waiting on answers? (This last one coming from me)

Well he gets his ass up and walks back there and the Doctors let Chris right in.  Chris has told me that his Dad doesn’t like to have others around when he is not at his best, so I stayed out in the waiting room out of respect.  So I was out of the loop and weird people were talking to me.  YAY!

Long story short, his Dad is alright for now.  They are not really sure what happened but the released him.  Chris knows that if something else happens I’m here.

So now it’s 3:30pm, I start work in 3 hours and still no sleep.  I probably won’t get to bed until I get home from work at 3:30am.  Another 12 hours to go.  I guess I’ll just take them 1 at a time.

I may be able to squeeze a few hours in, in the morning before I have to get the girls.  My sister has offered to pick them up for me and keep them a few hours to give me more time to sleep, but I’m not sure if I want to do that.  Chris says that my sister is trying to help “ME” so I should take her up on it.

Well see!
Erika



{April 21, 2010}   Some unkind weeks

Since I started this new position at work, I have not had 2 days off in a row to recharge the battery.  I have not been sleeping well, despite the muscle relaxers and I have been in absolute agony! 

My new position causes a lot of stress because there is so much to do and not a lot of time to get it done.  It’s a juggling act and in some cases a need for assistance as my time is very limited when my reps are actually working.  So, I have been bending over backwards to keep up and make sure that I am doing everything I can for my reps. 

There have been days that I have been dragging so much ass, I know that my Supervisor would have sent me home by now.  The Supervisor that I am currently working with knows what I am going through but also knows that if I came in then I am ok to work.

I came in one day in so much pain I felt like I was hit by a train!  I had a lidocaine patch on my back and it still did nothing to cut any of the pain off at all.  I had to go speak to my Supervisor and she asked if I was alright.  She then told me that she understood what I was trying to do but if I needed to take a day, then I needed the day!  I feel like such a failure for taking the day, so I rarely ever do.  My thought is if I can get up out of bed, then I can go into work and that is what I do.

One day my neck was hurting so bad, I had a patch on it and that did no good.  When you take all your medicine as you are advised to and add something to take some of the edge off and get no relief, it can be very depressing.  The depression is worse on the days that I know I need help and I ask for help but receive none.  That is mostly activities that deal with work and not home.

I have to give Chris his kudos as I know it is a huge pain to deal with me.  As soon as I walk into the door I fall apart.  I have been working so hard throughout the day to keep my pain from others that by the time I get home I have only made it worse and he has to deal with it.  I know that he understands that I do not like to show weakness and so he knows why when I get home it all comes out.  Most times I can’t even get up to go to the restroom without help.  If I pass out on the couch, he’ll leave me there so I can get some solid sleep for as long as possible. 

If I take the car, he worries as he knows that driving and sitting up in the car hurts like a mother.  I have gotten so bad in the car that I have to keep a pillow in the car to soften the back rest.  I am losing my grip in my right hand.  I will drop my soda bottles, glass, purse or even something as light as a piece of paper as it spasms and drops what is in it.  Most times I have to use both hands to hold a glass or bottle to drink out of.  I am currently unable to use chopsticks as my hands shake too much and I can’t keep it pinched to hold the food.

Everyday is a new struggle to get past the pain.  It seems like my medicine is no longer helping and that I am wasting my time.  I am not disappointed mind you as it’s 200 buck every 3 months for the current regimen I am on.  I need to become more active and at least start walking again so I can keep myself loose and limber.  A nice deep tissue massage would be wonderful as well.

Oh well, tomorrow is another day!

Cheers,
Erika



{March 14, 2010}   The Spasm

I have been working myself this week like a dog.  I have not been taking my additional break like I can, and I needed too, because I started a new position and I want to prove myself to my new supervisors and my team mates. 

So, I have been so busy that I have not had time to even think about the pain, let alone feel most of it.  Which, don’t get me wrong, is fantastic but it takes its toll too.  I had my girls this weekend, which I was not expecting and we had a nice relaxing day. 

I have been having a spasm in my back all day.  It was annoying at first because it would come and go.  Well at around 3 it decided not to play nice anymore.  I had a spasm right in the middle of my back that I had Chris yank me out of the chair I was sitting in and get me to another room as fast as we could so the girls wouldn’t see me cry.

Now let me explain that a little better.  My kids are 6 and 4 and they get really upset when I am having a bad day and they think that they hurt me.  So, instead of having them see me in such pain that I can’t explain to them, I try to shelter them from it.  If they do come into the room, I will tell them what is happening but if not they don’t need to know.

So, that literally doubled me over and had me sobbing within 2 seconds.  I don’t think Chris has ever seen a spasm that bad.  It just came out of no where and left me on my behind.

I think that this was due to a number of contributing factors.  The first is always the number 1 suspect, the Weather.  In Florida the weather can’t seem to figure out what the hell it wants to do at this point and my body is paying the price for it.  Number 2, my diet.  Try as I might, there are somethings that I just can’t go without and I know that I will pay for it.  It is very hard to remain healthy without taking supplements when you can not eat wheat, yeast, starch and red meats.  I am sure there are more that also add to this but I have not figured them out yet.  Number 3, my new job.  Running around, the anxiety of doing a good job, the new people the expectations, missing my kids, wanting to prove myself and not taking proper care of myself.

Between the 3, I am sure that I will continue to have wonderful days off as there is nothing I can really do about the weather.  Hopefully with Spring coming this will come to an end soon.  Once I figure out all the foods that I need to avoid and find the time to make an appropriate diet, I will have to continue with the meal regime as it is.  The job, nothing really I can do about that.  I am trying to leave it at work and not bring the stress home with me.  Also, if I ever want to become a Supervisor, I WANT to finish this program.  This position is all that a Supervisor would do, minus the disciplinary actions.  Which I think is great!!!

Again, if anyone has any tips please share!



{March 7, 2010}   The Jumpy Place

So, the girls like going to the jumpy place. For those of you who do not have kids, or super young kids, the Jumpy Place is an indoor bounce house place center. They have 8 moonwalkers (bouncers) and a couple of stand-alone doll house type toys.

Well, the girls love going there. They run from one bouncer to the next in like 20 seconds flat. I mean these things can be pretty brutal. You have to go through this tube, get past this pole and climb over some hurdles type stuff.

Well they go through these things and expect you to be able to keep up with them. So I’m going my best to keep up all the while killing myself trying to do it. I told myself that I would take it easy, that I had family going with me this time, so they should be able to go through some with them instead of me. Wrong! I mean they tried but it just really didn’t work out.

Chris is way too tall to try to go through them and my sister went through 2 and practically had a heart attack, so that left me. Oh to say that I am paying for it now is a HUGE under statement. My whole body hurts beyond words. If I had been blown up by a bomb, I think I would not hurt this much. Mind you I know I’d be dead with the bomb, but you understand what I mean.

So, my oldest child asks be today why I hurt all the time now? It is so hard to put into words why you have pain all the time. So, I’m trying to explain to her what is going on and what causes my condition. I think that she understands but not fully. She is only 6 so if she doesn’t understand it all it’s understandable. Hell I’m 29, it’s my condition and I don’t understand it fully. I know some of the things that inflame it and how I can attempt to avoid that, like Jumpy Places, but other than that you just have to roll with the punches.

So, now I am in agony and there is virtually nothing that I can do about it. I have already taken my medicines and so now I wait for sleep to over take me and hopefully get some relief from my pain.

Here’s to another day! Hopefully a more pain-free day.



{March 4, 2010}   More Pain

On Monday I doubled my medication like my doctor told me to do.  Well It worked, I was virtually pain free on Tuesday.  This was good because I had an interview at my job for another position.  My interview went well and I got some very helpful feedback.

Well you can imagine my excitement that I had a REALLY good day.  That was very short lived.  When I awoke this morning I was in complete agony.  I really had to find extra will power and use everything I had to get up and go into work this morning. 

I try not to tell my boyfriend about all the pain because really, how depressing is it to hear about someone’s pain everyday?  So I got up before he did and took my shower, and did the best I could to cover it the pain.  He still saw it but I think I masked most of the pain.  Nights are extremely hard at night because he is a wild sleeper and I often get jarred by him moving about in bed.  Most days I get a fist in my face, doesn’t hurt mind you but it’s enough to get my attention and wake me up.

So I took my medicine again tonight and we will see how I do in the morning.  I am hoping that I do not wake up in agony.



{February 27, 2010}   The Things We Do….

The things we do for our loved ones.  My oldest daughter Lexy who is 6 had her very first skate party today.  She was terrified to get out there and to be honest so was I. 

We helped her get the basics of skating and then she and I went out on the floor.  As we were going around, I had to catch her so many times that I stopped counting.  Of course I am not paying the price.  My boyfriend asked if I wanted to keep her over night, which I always want her with me, but tonight I knew that I could not do it.

I had to take her back to her dad’s house.  To which I walked in to a crying child.  The youngest, Bri, was crying that she thought that I was going to pick her up today.  I was upset that I had disappointed her, but glad I only had one child to take around the skating rink.

Their father was suppose to meet me and Lexy at the rink with Bri, so the  4 of us could do this together for the first time.  Having both of us there gave us each someone to help incase it got crazy.  He called and said that he had a bad stomach and that he and Bri were going to go on home.  So I took Lexy, since it was her party.

When I first arrived at the school to get her, she gave me a huge hug.  Then on the way to the car, she asks if we were going skating.  I of course asked how she was feeling because the Ex said he might have given them bad food that day.  Nothing was going to keep her from this party though.

So we go and encounter all the tears.  She was so scared of falling that she did not want to get out onthe floor.  So for those of you who know me, I told her straight to her face, “You Will Fall Many Times!!”  I am always honest with my kids.  Once she fell and got it out of her system she was good.  We went round and round that rink.

Now she can’t wait to go back.  My boyfriend and I may take her and her sister to a night skate but I am cautious as all the older kids are going to be there too. 

I am glad that she had a good time.  I will have to take her sister next time and see how the “Dare Devil” likes it.

Now of course I feel like I have been hit by a bus.  I will pay for it for the next few days but it is definitely well worth it since she had a really good time.  I am just glad that I am off tomorrow to re-coop.



{February 25, 2010}   Lovey

My Lovey! He is wonderful to me. Most of the time he understands me. He tries to take care of me to the best of his ability.  He basically waits on me hand and foot.  Gets me what ever I want.  Every now and then he gets me a little something that says I love you.  No matter the number of times I tell him to stop buying me stuff, he is still forever bringng stuff back.

I will do anything for him and he for me.  The most wonderful this is that he and my kids get along wonderfully.  My girls love to come over and see him.  They play games, watch movies and read stories together.  He loves every minute of it, even when we have to make them eat their food.

If I were here today without him, I do not thing that I would be able to do half the things that I do.  I don’t think I tell him enough about how great I think he is for me.  I know he just does things because that’s what he thinks is best and usually it is.  I would not trade him for anything in the world.

I Love You Lovey,

Your Baby =)



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