LivingWithThePain's Blog











{July 24, 2010}   Fibro and more

So I went to see my primary back at the beginning of June I think.  All my tests came back fine and dandy.  I mentioned that I was suffering from some abdominal pain again like when I stand up I feel a pull or cramp in that lower woman area. 

So they sent me for an ultrasound.  Well I dragged my feet and thought that I would get to it eventually.  Well my rheumatoid doctor send me for an MRI as well and I had a follow up last Thursday, the 22nd.  So I figured I should get the MRI done so I she had the results by the time my appointment came up.  Well that’s when I remembered I needed an ultrasound too, so I made an appointment for both on the same day at the same place.

So my primary calls me the other day and tells me that I have another ovarian cyst.  The nurse tells me “these things usually take care of themselves” so we will have you go for another ultrasound in about 3 months.  Mind you I have already been dealing with the pain for a month or so prior.  I waited almost 2 months to actually get the original ultrasound done and now I have to wait another 3 months.  So I asked the nurse what side it was on and how big it was.  She didn’t know??!!  WTF!  How can you call someone and tell them that there is something wrong with them and not even have all the information?  So I asked the nurse to put a note in my file.  “Please tell the NP that the last time I have ovarian cysts, I had them for over 6 months and the only reason it went away was due to surgery!”

The nurse then asks if I am okay waiting the 3 months for the ultrasound.  I said sure.  I will not be surprised if it is still there then and if not, super for me!

So the MRI came back.  My doctor was looking for a pinched nerve or something else to determine why I was having so much pain everywhere.  Maybe a hidden reason other than fibro.  Okay, I get that.  All it told her was I have arthritis in my neck.  Well, the x-ray that I had done like 6 months ago told her that, so it was a pointless expense that I will probably have to pay out of pocket because my insurance sucks.  But whatever, I got a lot of information out of it right!

Oh and tonight I went to a wedding reception, more like a house party.  They were having a drinking contest “flip the cup” and beer was the poison.  Well beer is made of yeast, which inflames the fibro, so I said that I could not play.  The groom proceeds to tell me that he thinks that fibro is bullshit and he came to this deduction because of the commercials that they play on television.  “Fibromylasia is a real disease.”  He says that if you have to say it’s real, then it’s something that is bogus.  I told him that the disease itself is not bogus but the medication is a joke, at least for me.  Nothing has helped. 

My doctor put me on Cymbalta, the depression medication, thinking that it has to do with the other chemical fluid that is in the brain since I didn’t respond to the other medication.  Well I read about it and it says that it can help with fibro too.  So sure I’ll try it.  I’ll do anything to help get rid of the pain right?  Yeah, side effect suicidal tendencies.  UNDERSTATEMENT!!!!!!  I took it for 3 days and was ready to literally jump off the Skyway!  My Supervisors at work even noticed that there was something wrong with me.  Thank goodness I have Chris and he told me to stop taking the medicine.  Otherwise, who knows if I would have jumped off the bridge or not.  I mean I wasn’t actually at the bridge but I was heading for the car to go!  Just didn’t want to leave the car up there for Chris to have to figure out how to get there and get if afterwards.  Completely selfish! I know right. 

So that’s my story as of now.  My doctor didn’t give me anything else for the primary meds of fibro.  She is sending me to physical Therapy in hopes that this will help strengthen stuff and help me build up my resistance without all these medicines.

I’ll let you know how it goes!
Erika

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Rebecca says:

Wow, that was a heartful. Breaks my heart to hear all that you are going through. I took the cymbalta for pain too, after a few weeks I was so depressed, not depressed prior that I had to stop taking it. I finally have pain under control taking ultram 2 every six hours and to vic when needed. I have a friend just found out she has the firbo, said after a car accident, I told her about your site, she needs this place to vent too.

I am sending you love, hard being the tough one, huh.
xoxo



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